Wednesday, March 9, 2016
Cleveland Clinic
You know, it's really, REALLY sad that I have to BEG my doctors to do
anything for me..
Ive been sick for 8 years now and have spent 2.5 years in Cleveland OH for the Clinic,
and all it's done is drain my money.
Everything I came here for is still an issue til this day.
Recently, I had a visit to a rheumatologist because I have been having chronic body pain.
Well before the appointment back in Oct of last year, my NP told me that I had Sacro-Ilitis in my hip joints,
which was the initial reason for sending me to an RT.
So I get to this appointment with this doctor(6 months later), and he asks me all these questions and thoroughly examines me
and then sends me off to have labs and X-rays.
Labs and X-rays come back and confirm that I do indeed have Sacro-Ilitis in my hips, my sed rate was 31(should be 15 or less) and I was Vitamin D defficient.
So he's like "yeah, you got mild SI, but I don't think thats really a problem..I recommend seeing your PCP for vitamin d, and your sed rate was high, probably due to your chrons" and thats it.
You mean to tell me, I had to wait 6 months for you to tell me to see my PCP for vitamin D and my GI..?
Ive literally been tossed around to Drs ever since I first came here 2 years ago, and no one has done anything.
My blood pressure is high, why is no one treating that?
I have chrons, why is no one putting me on something for that?
I don't sleep, why is no one treating that?
I have bad anxiety and stress, why is no one treating that?
I have proof of a rheumatologist issue, why is he not treating it??
I'm so incredibly fed up..
I feel like I definitely shouldn't even have to pay these high-ass Clinic bills for trips to see
these doctors who aren't doing anything but taking my money.
More over, I feel like no one should ever have to beg a Dr to help them as I just had to in this recent message I sent to my GI nurse practitioner and the Rhumetologist:
"Hi rebecca,
I just wanted to send you a message to let you know that my sed rate came back
incredibly high a few weeks ago, and am wondering if you can start me on something for it?
(Humara, ect)
I saw the rheumatologist and he did all these tests then X-rays came back confirming that I did in fact have
SI in hips and he just dismissed it along with my high sed rate and told me to see my PCP for Vitamin D and
that its probably my chrons that'd causing the high sed rate an not anything related to his field (despite my body pain).
here is a copy of my message to him:
Hello,
Could you please start me on something for my body pain?
It is getting really bad in my hips when I walk and becoming incredibly debilitating.
I feel like I have once again been left on my own with no help or medication.
I am not experiencing any GI problems at the time, so I am not feeling the inflammation is from that.
I am 23 years old and I hurt so much everyday, yet nothing is being done.
Ive spent all my savings here at the clinic and feel left with nothing.
I have been passed around from doctor to doctor and I just am not really sure what to do now..
thank you,
stashia"
I don't know what I'm going to do, but I'm about to lose it dealing with this. Im in so much pain, it hurts to walk, go up and down stairs and I can't sleep, but yet I can't get disability, so I am forced to work in this condition. Ive been strong for 8 years, and now its starting to physically wear on me.
Sigh.
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