Dealing with flare ups.

How I'm dealing with my current chrons flare and other health problems.

Cleveland Clinic

You know, it's really, REALLY sad that I have to BEG my doctors to do anything for me.. Ive been sick for 8 years now and have spent 2.5 years in Cleveland OH for the Clinic, and all it's done is drain my money. Everything I came here for is still an issue til this day. Recently, I had a visit to a rheumatologist because I have been having chronic body pain. Well before the appointment back in Oct of last year, my NP told me that I had Sacro-Ilitis in my hip joints, which was the initial reason for sending me to an RT. So I get to this appointment with this doctor(6 months later), and he asks me all these questions and thoroughly examines me and then sends me off to have labs and X-rays. Labs and X-rays come back and confirm that I do indeed have Sacro-Ilitis in my hips, my sed rate was 31(should be 15 or less) and I was Vitamin D defficient. So he's like "yeah, you got mild SI, but I don't think thats really a problem..I recommend seeing your PCP for vitamin d, and your sed rate was high, probably due to your chrons" and thats it. You mean to tell me, I had to wait 6 months for you to tell me to see my PCP for vitamin D and my GI..? Ive literally been tossed around to Drs ever since I first came here 2 years ago, and no one has done anything. My blood pressure is high, why is no one treating that? I have chrons, why is no one putting me on something for that? I don't sleep, why is no one treating that? I have bad anxiety and stress, why is no one treating that? I have proof of a rheumatologist issue, why is he not treating it?? I'm so incredibly fed up.. I feel like I definitely shouldn't even have to pay these high-ass Clinic bills for trips to see these doctors who aren't doing anything but taking my money. More over, I feel like no one should ever have to beg a Dr to help them as I just had to in this recent message I sent to my GI nurse practitioner and the Rhumetologist: "Hi rebecca, I just wanted to send you a message to let you know that my sed rate came back incredibly high a few weeks ago, and am wondering if you can start me on something for it? (Humara, ect) I saw the rheumatologist and he did all these tests then X-rays came back confirming that I did in fact have SI in hips and he just dismissed it along with my high sed rate and told me to see my PCP for Vitamin D and that its probably my chrons that'd causing the high sed rate an not anything related to his field (despite my body pain). here is a copy of my message to him: Hello, Could you please start me on something for my body pain? It is getting really bad in my hips when I walk and becoming incredibly debilitating. I feel like I have once again been left on my own with no help or medication. I am not experiencing any GI problems at the time, so I am not feeling the inflammation is from that. I am 23 years old and I hurt so much everyday, yet nothing is being done. Ive spent all my savings here at the clinic and feel left with nothing. I have been passed around from doctor to doctor and I just am not really sure what to do now.. thank you, stashia" I don't know what I'm going to do, but I'm about to lose it dealing with this. Im in so much pain, it hurts to walk, go up and down stairs and I can't sleep, but yet I can't get disability, so I am forced to work in this condition. Ive been strong for 8 years, and now its starting to physically wear on me. Sigh.