Thursday, March 28, 2013

Frustrated

So basically, I am sitting around my house all day doing nothing but playing Halo 4 and sleeping. I've been so fatigued lately, that I haven't had very much energy at all. Two hours after waking up, I am ready to go back to bed. I have also started to get really bad stomach pains when eating again. Everything is just getting worse, and none of my doctors are doing anything..well one is doing more than the other. I haven't even talked to my adult GI doctor in three months. That's great, considering he knows how severe my symptoms were the last time that he saw me. My pediatric GI doctor pretty much told me that he is at a loss for what to do next. He mentioned maybe sending me to Vanderbilt or some other facility that specializes in difficult cases, but I've been to Vanderbilt before and they didn't do anything for me. It was just a waste of gas, money, and a huge disappointment. He also had mentioned possibly switching me from Remicade to Humira, to see if that would help more, but I don't really want to go on Humira at all. I'm just getting really frustrated with not being able to do anything because I am so tired, and i'm really tired of the stomach pain all the freaking time. It is absolutely the worst feeling in the world to hear your doctor tell you that they don't know what else to do for you...it really is. :/
I don't know where to go from here.

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